The story revolves around a family in Japan struggling with their daughter's rare disease that currently has no cure. As the child's school years approach, they find themselves navigating not just her medical challenges, but the added stress of the educational system. This news piece delves into their journey, the societal pressures they face, and the battles they fight for equal opportunities in the education sector.
In Japan, there is significant societal pressure to conform and fit into the standard academic mould, which can make it particularly challenging for parents of children with special needs or severe health conditions. The societal and legal values at play often revolve around inclusivity, fairness, and access to education for all, regardless of their personal circumstances.
In the US and EU, there is a stronger emphasis on inclusive education for students with special needs or disabilities, with laws in place such as the Individuals with Disabilities Education Act in the U.S. and the European Agency for Special Needs and Inclusive Education in the EU. There is also a wider recognition and support for rare diseases and their impacts on the families affected.