This article centers around a Japanese mother tirelessly seeking to focus on the positive aspects in the life of a child diagnosed with a rare disease. Despite the hardships, the mother strives to draw attention to her child’s growth and spirit, challenging societal stigma associated with the disease. Her journey is representative of many Japanese families grappling with similar circumstances.

In Japan, disabilities or rare diseases often carry social stigmas, with some people preferring to remain silent about their family member's conditions. However, more and more parents like the mother in question are drawing attention to their children’s situations as a means of social change. While access to healthcare in Japan is universal, the conversation around the acceptance of disabilities in society is still in progress.

In the U.S or EU, numerous support groups, awareness campaigns, and services exist for families dealing with rare diseases. In addition, the societal acceptance of those with disabilities is generally higher, though still an ongoing struggle. The laws surrounding disability rights are also more robust and enforced in these regions.